A data protection framework for transeuropean genetic research projects
- verfasst von
- Brecht Claerhout, Nikolaus Forgó, Tina Krügel, Marian Arning, Georges De Moor
- Abstract
The paper proposes a data protection framework for trans-European medical research projects, which is based on a technical security infrastructure as well as on organizational measures and contractual obligations. It mainly relies on pseudonymization, an internal Data Protection Authority and on a Trusted Third Party. The outcome is an environment that combines both good research conditions and an extensive protection of patients' privacy.
- Organisationseinheit(en)
-
Institut für Rechtsinformatik (IRI)
- Externe Organisation(en)
-
Custodix
- Typ
- Aufsatz in Konferenzband
- Seiten
- 67-72
- Anzahl der Seiten
- 6
- Publikationsdatum
- 2008
- Publikationsstatus
- Veröffentlicht
- Peer-reviewed
- Ja
- ASJC Scopus Sachgebiete
- Biomedizintechnik, Gesundheitsinformatik, Gesundheits-Informationsmanagement
- Elektronische Version(en)
-
https://doi.org/10.3233/978-1-58603-922-6-67 (Zugang:
Offen)
